After input from many doctors, it has become apparent that Jessie needs to have brain surgery yet again. Including shunt and revision, this will be her 5th brain surgery. Hopefully, we can finally put an end to her seizures with this procedure, but there are no guarantees.
There are small amounts of tissue left in her frontal and temporal lobes that may be the cause, but even with EEGs, MRIs, SPECTs, PETs, etc.., no one can be sure.
She can't live with the seizures, and even on her increased medications she has 5 or more a day.
Right now, the plan is to have the surgery in mid-to-late May. She would continue with school until the day of surgery, then finishing out her school year in the hospital or with home-bound instruction.
The surgery will be done at Cook Children's Medical Center by Dr. Donahue.
Blessings,
Cris and Kristi
Wednesday, April 6, 2011
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4 comments:
Seth Wohlberg shared your blog link with me.
I'm sorry to hear that Jessie has to undergo surgery again, but I hope it will be successful. It's touching to read about the loving support and work that you put into helping her. Thanks for the inspiration!
Best,
Tiffany Webb
Producer
The Sacred Disease film
www.sacreddisease.com
I'm sorry to hear that Jessie has to have surgery again. My prayers continue for her and her family.
Sharon C.
Dallas
I feel sorry about her surgery again. God bless her. I will pray for her.
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Jessie was doing so well that I stopped reading the blog for about six or more months. Then I resumed reading it off nad on about two months ago. Wow!!! Several brain surgeries, including the pending one, and the disappointing news about the return of seizures. Know that the whole family is in my hearts and prayers.
Vanessa and Seeing Eye dog Griffin in Maryland
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