Today, Jessie is 5 weeks post Hemispherectomy Re-do, and we are happy to report that Jessie has been seizure free since surgery. We are cautiously optimistic about her seizure freedom, but very happy with the results so far.
Her neurologist at Cook Children's is taking her off of Vimpat, and she will continue on Tegretol for the forseeable future.
This morning, Jessie celebrated by helping make breakfast. Here is her one-handed egg breaker from Walmart's "As Sold on TV" section.
http://www.youtube.com/watch?v=tTYg6F-j-aE
Check out what is written on her t-shirt.
For those of you going to California Disneyland this summer, for the Hemi Foundation Conf. and Family Reunion, we'll see you on July 7th. If you haven't registered yet, do so ASAP. http://www.HemiFoundation.org .
Best Regards, Cris
Saturday, May 28, 2011
Friday, May 6, 2011
Jessie Update : 2 weeks Post Surgery
Just a quick update on Jessie. She is recovering well, but not quite to
baseline, but progressing well. She will start back to school on Monday.
She has been seizure free now for over 2 weeks, so we are cautiously optimistic.
Dr. Donahue at Cook Children's removed only three small tissue parts (the size
of peas) from her temporal, occipital, and frontal areas. These little pieces
of tissue were really all that remained in the right hemisphere, and he even
thought those were disconnected.
Prior to this surgery, her 2nd Hemi Redo, she was having 60+ seizures a day.
(complex partial, where she had some awareness, right eyelid twitching)
We are too cautious now to claim victory over seizures. Ask me in 10 years or
so. But right now, things are good.
Jessie will be attending Summer School to make up for some of what she missed,
and then Constraint Therapy at UAB before coming to Anaheim for the Hemi
Foundation Conf.
We look forward to seeing many of you at the Dreams on Wings 5K and at The Hemi Foundation Conference and Family Reunion at Disneyland this summer.
If you haven't signed up for the walk/run, you can still do so at http://www.HemiFoundation.org .
Thanks for all of your prayers and support.
Cris and Kristi
baseline, but progressing well. She will start back to school on Monday.
She has been seizure free now for over 2 weeks, so we are cautiously optimistic.
Dr. Donahue at Cook Children's removed only three small tissue parts (the size
of peas) from her temporal, occipital, and frontal areas. These little pieces
of tissue were really all that remained in the right hemisphere, and he even
thought those were disconnected.
Prior to this surgery, her 2nd Hemi Redo, she was having 60+ seizures a day.
(complex partial, where she had some awareness, right eyelid twitching)
We are too cautious now to claim victory over seizures. Ask me in 10 years or
so. But right now, things are good.
Jessie will be attending Summer School to make up for some of what she missed,
and then Constraint Therapy at UAB before coming to Anaheim for the Hemi
Foundation Conf.
We look forward to seeing many of you at the Dreams on Wings 5K and at The Hemi Foundation Conference and Family Reunion at Disneyland this summer.
If you haven't signed up for the walk/run, you can still do so at http://www.HemiFoundation.org .
Thanks for all of your prayers and support.
Cris and Kristi
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