Today, Jessie is 5 weeks post Hemispherectomy Re-do, and we are happy to report that Jessie has been seizure free since surgery. We are cautiously optimistic about her seizure freedom, but very happy with the results so far.
Her neurologist at Cook Children's is taking her off of Vimpat, and she will continue on Tegretol for the forseeable future.
This morning, Jessie celebrated by helping make breakfast. Here is her one-handed egg breaker from Walmart's "As Sold on TV" section.
http://www.youtube.com/watch?v=tTYg6F-j-aE
Check out what is written on her t-shirt.
For those of you going to California Disneyland this summer, for the Hemi Foundation Conf. and Family Reunion, we'll see you on July 7th. If you haven't registered yet, do so ASAP. http://www.HemiFoundation.org .
Best Regards, Cris
Showing posts with label jessie hall hemispherectomy. Show all posts
Showing posts with label jessie hall hemispherectomy. Show all posts
Saturday, May 28, 2011
Saturday, July 12, 2008
Fever Persists
http://www.prayforjessie.org
The fever has persisted and gotten as high as 102.5 today. They are able to control it with Motrin, but they can't seem to figure out where it is coming from. The blood work is pretty much inconclusive.
Fever, of course, usually indicates an infection (either bacterial or viral), but nothing significant is showing up in blood or urine samples. Hemispherectomy kids, usually have persistent fevers, but I'm not sure if these are common 1 month after surgery. I'm waiting for some answers from other parents who have gone through this process to see what their experiences were.
In the mean time, Jessie is feeling pretty good when the Mortrin is in her, and even did all of her therapy today. Sunday's are, Biblically and in the rehab world of KKI, a day of rest.
I hope that everyone has a Sunday full of rest for the body and for the spiritual soul. Please say a little prayer for Jessie, that this pesky fever goes away, and we can come back to Texas next week.
I've added blogs of other Hemispherectomy kids to my blog list on the left bottom of Jessie's blog. These are either recent kids who have undergone the procedure, or who will soon do it. Please offer up a short prayer for these kids as well.
Kristi and I hope to see all of you real soon, so that you can see how well Jessie is doing. Her voices and speech are good, and her left hand is about the same as before surgery...only it isn't in a continuous seizure anymore. She is not able to walk on her own yet, however, her legs are getting stronger and hopefully in a month or so, she will be there.
We had a wonderful visit with Caren Jennings while she was up here this week, and I believe that she may have made a new friend in Jane Stefanik. I know that we have. The Hemispherecomy Foundation will be a HUGE success with these two on the team. I know that many others of you want to be a part of The Hemispherectomy Foundation, and I look forward to working with you. In the meantime, please send emails to Kristi or Caren, and we will file them away until we have projects ready to launch. Thanks again to all of you who have volunteered to help.
God's Rest to all of you tonight. Cris
The fever has persisted and gotten as high as 102.5 today. They are able to control it with Motrin, but they can't seem to figure out where it is coming from. The blood work is pretty much inconclusive.
Fever, of course, usually indicates an infection (either bacterial or viral), but nothing significant is showing up in blood or urine samples. Hemispherectomy kids, usually have persistent fevers, but I'm not sure if these are common 1 month after surgery. I'm waiting for some answers from other parents who have gone through this process to see what their experiences were.
In the mean time, Jessie is feeling pretty good when the Mortrin is in her, and even did all of her therapy today. Sunday's are, Biblically and in the rehab world of KKI, a day of rest.
I hope that everyone has a Sunday full of rest for the body and for the spiritual soul. Please say a little prayer for Jessie, that this pesky fever goes away, and we can come back to Texas next week.
I've added blogs of other Hemispherectomy kids to my blog list on the left bottom of Jessie's blog. These are either recent kids who have undergone the procedure, or who will soon do it. Please offer up a short prayer for these kids as well.
Kristi and I hope to see all of you real soon, so that you can see how well Jessie is doing. Her voices and speech are good, and her left hand is about the same as before surgery...only it isn't in a continuous seizure anymore. She is not able to walk on her own yet, however, her legs are getting stronger and hopefully in a month or so, she will be there.
We had a wonderful visit with Caren Jennings while she was up here this week, and I believe that she may have made a new friend in Jane Stefanik. I know that we have. The Hemispherecomy Foundation will be a HUGE success with these two on the team. I know that many others of you want to be a part of The Hemispherectomy Foundation, and I look forward to working with you. In the meantime, please send emails to Kristi or Caren, and we will file them away until we have projects ready to launch. Thanks again to all of you who have volunteered to help.
God's Rest to all of you tonight. Cris
Subscribe to:
Posts (Atom)
