I haven't really sat down and wrote for a while, and I miss putting my thoughts down on e-paper. I have a lot on my mind, as does Kristi, with the surgery date rapidly approaching. Panic Attacks are becoming more frequent. I know that God will take care of Jessie, but I still can't help but worry about the 2% that don't make it through this surgery, or all the ones that lose so much physically and mentally.
Imagine that you are at Six-Flags, and you turn around, and one of your kids is gone. You don't panic at first, you calmly look around and scan the crowd, looking for that specific shirt or cap that you know that they are wearing. You definitely know that you will spot them. Then a minute passes, then two, and you realize that they are not within eye-shot...then you begin to move....fast, still scanning the crowd, now calling loudly...not caring what the people around you think. Then you start running and screaming, not knowing if they will be around the next corner or not...this IS panic. This is the panic that I feel daily.
If it were not for staying busy, family, friends, and especially my faith in God, I don't think that I would be a sane person right now....I'm not sure if I AM a sane person right now...
About Me
- Jessie
Mail: Jessie Hall
c/o The Hemispherectomy Foundation
P.O.Box 1239
Aledo, TX 76008
Jessie is 8 years-old and in 2nd Grade. She has 3 brothers, Matt(12), Jake(10) and Josh(10). She loves people, and never met a stranger. She loves to laugh and sing and play. Jessie was diagnosed with Rasmussen's Encephalitis(RE), which is a rare brain disease that usually attacks healthy children about her age. The only known treatment for this cruel disease is a hemispherectomy (surgical removal of one-half of the brain) This is an account of Jessie's confrontation with RE and her families attempts to navigate through a new world to bring her the best care possible. Surgery was on June 11, 2008. This Blog is an attempt to help people undertand this disease and surgery, and to help others with kids going through it to find comfort and resource from someone who has been there before. Read from bottom, up. It will be updated continuously through Jessie's Miraculous Recovery.
**To add Comments, just click "Comments".Or, email Jessie at Jessie@Hallzoo.com.
2 comments:
We all feel your panic. Remembe to breathe... Too many peopple are with you all and will help pull you all through this!
I cam more than relate to your anziety as my daughter too has Rasmussen's. My name is Darrell Smith and my daughter Imani had the same surgery on November 20th of 2006. I can say from experience that you wil experience a full range of emotions but it will be ok. God is with you . Contact us as smith.darrel@sbcglobal.net or 972-292-3298. We live in Little Elm.
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