8/2/2008
Jessie had a special PT helper on Friday. She was riding the bike in the hallway and Dr. Marks jumped on for a ride! She really had to work those leg muscles but she hung in there and did a great job.
About Me
- Jessie
Mail: Jessie Hall
c/o The Hemispherectomy Foundation
P.O.Box 1239
Aledo, TX 76008
Jessie is 8 years-old and in 2nd Grade. She has 3 brothers, Matt(12), Jake(10) and Josh(10). She loves people, and never met a stranger. She loves to laugh and sing and play. Jessie was diagnosed with Rasmussen's Encephalitis(RE), which is a rare brain disease that usually attacks healthy children about her age. The only known treatment for this cruel disease is a hemispherectomy (surgical removal of one-half of the brain) This is an account of Jessie's confrontation with RE and her families attempts to navigate through a new world to bring her the best care possible. Surgery was on June 11, 2008. This Blog is an attempt to help people undertand this disease and surgery, and to help others with kids going through it to find comfort and resource from someone who has been there before. Read from bottom, up. It will be updated continuously through Jessie's Miraculous Recovery.
**To add Comments, just click "Comments".Or, email Jessie at Jessie@Hallzoo.com.
2 comments:
Jessie, good for you! You did a great job taking your doctor for a ride! It is terrific to see how well you are doing. Keep up the good work. :o)
LeeAnn
Richardson, TX
Wow! That takes a lot of work! Good for Jessie! I think we need to get Hollis to work on that. ;)
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