Monday, March 9, 2009
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About Me
- Jessie
Mail: Jessie Hall
c/o The Hemispherectomy Foundation
P.O.Box 1239
Aledo, TX 76008
Jessie is 8 years-old and in 2nd Grade. She has 3 brothers, Matt(12), Jake(10) and Josh(10). She loves people, and never met a stranger. She loves to laugh and sing and play. Jessie was diagnosed with Rasmussen's Encephalitis(RE), which is a rare brain disease that usually attacks healthy children about her age. The only known treatment for this cruel disease is a hemispherectomy (surgical removal of one-half of the brain) This is an account of Jessie's confrontation with RE and her families attempts to navigate through a new world to bring her the best care possible. Surgery was on June 11, 2008. This Blog is an attempt to help people undertand this disease and surgery, and to help others with kids going through it to find comfort and resource from someone who has been there before. Read from bottom, up. It will be updated continuously through Jessie's Miraculous Recovery.
**To add Comments, just click "Comments".Or, email Jessie at Jessie@Hallzoo.com.
3 comments:
That's awesome!
Hi Cris- I sent the following email out to some friends here at work! Several of us will be there!
Hi! I have been very touched by the story regarding Jessie Hall. A brief reminder…she is the little girl from Aledo, TX who had to have half her brain removed for Rasmussen's Encephalitis(RE). I have followed her story from the beginning till today. She is doing AWESOME!!! They are having a fun walk/run benefiting her (well her disease). Anyways, it is for a great cause! If you are interested I have attached the website with the flyer and registration info. It is May 16, 2009 in Weatherford. I am also including the link to her blog- her Mom and Dad have kept everyone in the loop. Alyssa and I will be doing this race so please let me know if you are interested.
We can't wait for this FUN event!!!
Thanks!
Kara
Ft. Worth
Benefiting The Hemispherectomy Foundation, not Jessie. Looking forward to meeting you all.
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