Jessie started Kindergarten today and she is in Ms. McGaugh's class. She gets to ride the bus with her big brothers, but most importantly Mom and Dad don't have to pay day care anymore. Horray!!!
http://jessiekelley.blogspot.com/
Showing posts with label jessie hall rasmussen seizure encephalitis brain. Show all posts
Showing posts with label jessie hall rasmussen seizure encephalitis brain. Show all posts
Thursday, February 21, 2008
Our Big Girl Starts School
08/27/2007
Jessie started Kindergarten today and she is in Ms. McGaugh's class. She gets to ride the bus with her big brothers, but most importantly Mom and Dad don't have to pay day care anymore. Horray!!!
http://jessiekelley.blogspot.com/
Jessie started Kindergarten today and she is in Ms. McGaugh's class. She gets to ride the bus with her big brothers, but most importantly Mom and Dad don't have to pay day care anymore. Horray!!!
http://jessiekelley.blogspot.com/
Sleep Deprived EEG - And Kristi Gets an Award
08/07/2007
Today, Jessie had her 1st Sleep Deprived EEG or any EEG for that matter. This proceedure is to see if the electrical activity in her brain is normal. i.e. doesn't have any hyper excitement spikes or areas of abnormal slowing. This is a great test for Jessie because she got to have 20 or so pretty wires glued to her head and forced to look into strobe lights and hyperventilate to try to make her have a seizure. She didn't. Sound fun?
This is great for Mom and Dad too, because we get to keep her up late and wake her up early. Luckily Kristi took the 4:00AM wake-up duty, and I gladly took Jessie to her EEG appointment.
Also, Today Kristi received the Technical Excellence Award in Research & Development at Alcon Laboratories. We are all so proud of her achievements.
Uncle Mark, Aunt Michelle, and Justin were down from Cheyenne, Wyoming for a visit. We had a great time swimming and playing together and just enjoying their company. Matt, Jake, Josh, and Jessie LOVE their big-kid cousin Justin and Justin is so good to them.
http://jessiekelley.blogspot.com/
Today, Jessie had her 1st Sleep Deprived EEG or any EEG for that matter. This proceedure is to see if the electrical activity in her brain is normal. i.e. doesn't have any hyper excitement spikes or areas of abnormal slowing. This is a great test for Jessie because she got to have 20 or so pretty wires glued to her head and forced to look into strobe lights and hyperventilate to try to make her have a seizure. She didn't. Sound fun?
This is great for Mom and Dad too, because we get to keep her up late and wake her up early. Luckily Kristi took the 4:00AM wake-up duty, and I gladly took Jessie to her EEG appointment.
Also, Today Kristi received the Technical Excellence Award in Research & Development at Alcon Laboratories. We are all so proud of her achievements.
Uncle Mark, Aunt Michelle, and Justin were down from Cheyenne, Wyoming for a visit. We had a great time swimming and playing together and just enjoying their company. Matt, Jake, Josh, and Jessie LOVE their big-kid cousin Justin and Justin is so good to them.
http://jessiekelley.blogspot.com/
Welcome to Neurology and Epilepsy 101
08/06/2007
Today we went to Cook's Children's Hospital http://www.cookchildrens.org/Pages/default.aspx and Met with Dr. Chacon, one of the three Pediatric Neurologist (Epileptologist). She examined Jessie, and scheduled an MRI and EEG. She felt certain that Jessie had a seizure on the boat.
Epilepsy (or sometimes called Seizure Disorder) is usually diagnosed after a person has had at least two seizures that were not caused by some known medical condition like alcohol withdrawal or extremely low blood sugar.
If you are interested in learning about Epilepsy, this is a good site that has helped us tremendously. http://www.epilepsy.com/epilepsy/main_epilepsy
So Jessie may have epilepsy. She will defintely have Epilepsy if she has another unexplained seizure. We asked to not go on anti-seizure medicine immediately, to see if she had her second seizure. We had read that sometimes kids have one seizure, and never have another one. This is what we were hoping for.
We were upset with the thought of Epilepsy. Our kid!! That only happens to other people's kids. Well, if that is what it ends up being, then we can deal with it. Lots of people have epilepsy as we were begining to find out. http://www.epilepsy.com/101/ep101_who
So we will just wait and see if she has another seizure. We felt certain that she wouldn't.
http://jessiekelley.blogspot.com/
Today we went to Cook's Children's Hospital http://www.cookchildrens.org/Pages/default.aspx and Met with Dr. Chacon, one of the three Pediatric Neurologist (Epileptologist). She examined Jessie, and scheduled an MRI and EEG. She felt certain that Jessie had a seizure on the boat.
Epilepsy (or sometimes called Seizure Disorder) is usually diagnosed after a person has had at least two seizures that were not caused by some known medical condition like alcohol withdrawal or extremely low blood sugar.
If you are interested in learning about Epilepsy, this is a good site that has helped us tremendously. http://www.epilepsy.com/epilepsy/main_epilepsy
So Jessie may have epilepsy. She will defintely have Epilepsy if she has another unexplained seizure. We asked to not go on anti-seizure medicine immediately, to see if she had her second seizure. We had read that sometimes kids have one seizure, and never have another one. This is what we were hoping for.
We were upset with the thought of Epilepsy. Our kid!! That only happens to other people's kids. Well, if that is what it ends up being, then we can deal with it. Lots of people have epilepsy as we were begining to find out. http://www.epilepsy.com/101/ep101_who
So we will just wait and see if she has another seizure. We felt certain that she wouldn't.
http://jessiekelley.blogspot.com/
How it all began : Jessie's first seizure
08/04/2007
Note : This may be a little confusing at first, because we are actually writing a lot of these entries in February of 2008, and back dating them to when they actually happened. We hope to be caught up by Feb 24th, so everything after that should be closer to real time.
The reason that we are doing this, is so that all of our friends and relatives can keep up with Jessies progress, diagnosis, treatment. I know that I have hurt some feelings by not communicating things, and we hope to avoid that in the future by using this forum. Thank You so much for reading this and for all of your support and encouragement.
We were having a wonderful time on Lake Texoma sailing with a work friend of Kristi's. What a brave man, as he invited all of the Hall Zoo, including the four kids, out for the day. We were aboard his boat, the Pegasus and begining to have a spectacular day. We had no idea that the next chapter of our life was about to be written.
We had been on the water approximately 1 ½ hours, and Jessie appeared normal, chattering away like she always does.
Slowed down to eat lunch. Jessie appeared to be falling asleep while eating her sandwich (in the shade). (wheat bread, turkey, American cheese). We called her name, took the sandwich from her but no response. Cris picked her up and tried to get a response from her. Nothing. Put an ice pack on her face. No response. Put the ice pack on the back of her neck. No response. ~2-4 minutes. At the time we didn't know it, but this was what is called a Complex Partial Seizure. http://en.wikipedia.org/wiki/Complex_partial_seizure
Jessie’s left eye and her head started jerking to the left, becoming more pronounced. Under the shade, pin point pupils. Color good. She tried to focus on me, small grunting noises. Tried to grab the bill of my cap. I asked her to squeeze my hand. She did try but only in short squeezes. Lots of drooling. Her legs started to twitch some.
After about 5 minutes, she stopped but could not keep her eyes open. Not responsive to my voice but did respond when I tickled the palm of her hand and tickled her feet. Color good. Breathing good. Twice right hand went in the air as if she was waving.
We called 911 from out in the middle of Texoma, and began our long, slow trip back to the marina. We were met about half way back by a game warden in a speed boat. He had heard the call and met us. We transferred Jessie and I to the speed boat, and began a much quicker trip back. We were about 5 minutes out from the marina, when another speed boat met us with the paramedics, and they jumped on board and began working on Jessie. At this point, they said that she was post-ictal (which means she had a seizure but was over it).
She responded to stroking her sternum (pushed hand away) and needle stick, but not much more. The ambulance took us from the Marina to the Hospital on the Texas side of the Lake.
Low potassium. Otherwise told that blood, urine, chest x-ray, CT, ECG were normal.
We left the hospital and drove home (luckily, the DPS officer that caught me speeding felt sorry for us and let me off with a warning).
We didn't sleep too much that night.....
http://jessiekelley.blogspot.com/
Note : This may be a little confusing at first, because we are actually writing a lot of these entries in February of 2008, and back dating them to when they actually happened. We hope to be caught up by Feb 24th, so everything after that should be closer to real time.
The reason that we are doing this, is so that all of our friends and relatives can keep up with Jessies progress, diagnosis, treatment. I know that I have hurt some feelings by not communicating things, and we hope to avoid that in the future by using this forum. Thank You so much for reading this and for all of your support and encouragement.
We were having a wonderful time on Lake Texoma sailing with a work friend of Kristi's. What a brave man, as he invited all of the Hall Zoo, including the four kids, out for the day. We were aboard his boat, the Pegasus and begining to have a spectacular day. We had no idea that the next chapter of our life was about to be written.
We had been on the water approximately 1 ½ hours, and Jessie appeared normal, chattering away like she always does.
Slowed down to eat lunch. Jessie appeared to be falling asleep while eating her sandwich (in the shade). (wheat bread, turkey, American cheese). We called her name, took the sandwich from her but no response. Cris picked her up and tried to get a response from her. Nothing. Put an ice pack on her face. No response. Put the ice pack on the back of her neck. No response. ~2-4 minutes. At the time we didn't know it, but this was what is called a Complex Partial Seizure. http://en.wikipedia.org/wiki/Complex_partial_seizure
Jessie’s left eye and her head started jerking to the left, becoming more pronounced. Under the shade, pin point pupils. Color good. She tried to focus on me, small grunting noises. Tried to grab the bill of my cap. I asked her to squeeze my hand. She did try but only in short squeezes. Lots of drooling. Her legs started to twitch some.
After about 5 minutes, she stopped but could not keep her eyes open. Not responsive to my voice but did respond when I tickled the palm of her hand and tickled her feet. Color good. Breathing good. Twice right hand went in the air as if she was waving.
We called 911 from out in the middle of Texoma, and began our long, slow trip back to the marina. We were met about half way back by a game warden in a speed boat. He had heard the call and met us. We transferred Jessie and I to the speed boat, and began a much quicker trip back. We were about 5 minutes out from the marina, when another speed boat met us with the paramedics, and they jumped on board and began working on Jessie. At this point, they said that she was post-ictal (which means she had a seizure but was over it).
She responded to stroking her sternum (pushed hand away) and needle stick, but not much more. The ambulance took us from the Marina to the Hospital on the Texas side of the Lake.
Low potassium. Otherwise told that blood, urine, chest x-ray, CT, ECG were normal.
We left the hospital and drove home (luckily, the DPS officer that caught me speeding felt sorry for us and let me off with a warning).
We didn't sleep too much that night.....
http://jessiekelley.blogspot.com/
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