Jessie's friend Alex is over for a sleep-over tonight, and they had a little water fun on the trampoline. Only in Texas can you play in the water in January.
Friday, January 23, 2009
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About Me
- Jessie
Mail: Jessie Hall
c/o The Hemispherectomy Foundation
P.O.Box 1239
Aledo, TX 76008
Jessie is 8 years-old and in 2nd Grade. She has 3 brothers, Matt(12), Jake(10) and Josh(10). She loves people, and never met a stranger. She loves to laugh and sing and play. Jessie was diagnosed with Rasmussen's Encephalitis(RE), which is a rare brain disease that usually attacks healthy children about her age. The only known treatment for this cruel disease is a hemispherectomy (surgical removal of one-half of the brain) This is an account of Jessie's confrontation with RE and her families attempts to navigate through a new world to bring her the best care possible. Surgery was on June 11, 2008. This Blog is an attempt to help people undertand this disease and surgery, and to help others with kids going through it to find comfort and resource from someone who has been there before. Read from bottom, up. It will be updated continuously through Jessie's Miraculous Recovery.
**To add Comments, just click "Comments".Or, email Jessie at Jessie@Hallzoo.com.
1 comment:
Hi, my name is also Jessie. I living in Chile (Santiago) and I found your blog searching in web...
Your history touch me deeply (sorry, my english is not good). I only want to tell you I want all is going well.
I send you a hug from this far country, hoping this beatiful girl win her battle.
Good luck!!!
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