Friday, August 29, 2008

Rasmussen's Encephalitis and EPC - What it looks like.

http://www.hemifoundation.org

This post, for the most part is not going to be very interesting to most people, except those dealing with, having delt with, or thinking they may be dealing with Rasmussen's Encephalitis. Boy that was a mouthful...

When Jessie's fingers started twitching in November of 2007, Kristi and I were suspecting Rasmussen's, however, it was a second opionion neurologist that first said "Encephalitis".
So I went searching for videos on the internet of EPC, so that I could compare to Jessie's twitching to see if it was similar. There were no videos anywhere of EPC. So Kristi filmed Jessie's hand the day before we left for Johns Hopkins.

This is how it looked. http://www.youtube.com/watch?v=AxIsYmO6D-Q

It had been twitching for 7 months, and honestly, the twitching isn't as bad in this video as it had been. Paresis had set in so bad that the twitching was being replaced by paresis.
Her eyes, mouth, and neck had also began twitching, but I regretably have no video of that except on WJZ.com in Baltimore, and that won't be there forever.

I know that each Rasmussen's case presents differently, but hopefully this will help someone.

Cris

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