I'm sure that by the time most of you have read this, you will already know what I'm about to tell you. It seems that these days, the television news is faster than me!! I knew that I was getting old and slow, but this is ridiculous!
OK, as reported by CBS 13 in Baltimore and CBS 11 in Dallas, and whomever else, Jessie IS coming home to Texas on Friday!!!! Hooray!!!!!! Praise our Father in Heaven!!!
Her Fevers are less frequent, and right now, everything is a GO to leave KKI on Thursday, and fly back to Dallas on Friday, and check in to Cook Children's Hospital in Fort Worth for another couple of weeks of in-patient rehab. We are so excited!!!
For those of you who saw the report tonight, I know that you share in our joy to see Jessie ride a rehab bike and walk with assistance. It is truly a miracle of God and modern medicine. Jessie still has a long way to go, but she has come SO FAR!
I have heard that some of you want to get Jessie something as a way to say "Welcome Home!", and we appreciate the thought so much. Jessie has been so blessed by the outpouring of support through various gifts and we are so grateful. We ask, however, if you want to do something in Jessie's name, please donate to The Hemispherectomy Foundation. The donation IS tax deductible, and it will go to help many other children and their families. Jessie's room can only hold so many stuffed animals. :-)
To donate to The Hemispherectomy Foundation:
Send your tax deductible donation to:
The Hemispherectomy Foundation
PO Box 1239
Aledo, TX 76008
or buy a t-shirt or bracelet from The Pinkalicious Boutique. All proceeds benefit The Hemi Foundation.
For those of you who read the comments, we were honored to have Dr. Hsu leave Jessie a comment tonight. He, of course is the doctor who assisted Dr. Carson with Jessie's surgery, and let our little girl write Texas Tech on his forehead. A real humbling experience for a Michigan man! Thanks Dr. Hsu
Also, please say a prayer tonight for the Johnson family in Schertz Texas (near San Antonio). Westley, 8, is struggling with intractable seizures and his family is struggling to do the best for him. They have done so much already, and refuse to give up. Let's raise them up to God as well and hope that they find some peace for Westley and the whole family.
To give you an idea of the diversity of health issues that go on here at KKI, I'm going to pass on a YouTube video from one of the patients here. This is Isabella, and she is the cutest little 4-year-old girl that you will ever meet. On the outside, there appears to be nothing wrong. She's always smiling and so outgoing...but here is her story. Get ready for a cry when you watch this one. Remember, every kid and family up here has a story. Please pray for Bella to learn to eat! Seems simple...but it's not.
Of course she is at KKI, so here is a follow up video to make you smile :
Here are some pictures of Jessie at Rehab in Kennedy Krieger : Work & Play!
Here is Jessie on the Split Belt Treadmill. She does this once a day.
This thing is PT (Physical Torture). They let me try it and within 1 minute and 20 seconds, my left thigh was burning like a had run 10 miles. No kidding...and I used to run marathons. They make Jessie do it 3 times...2 and a half minutes each time!!
The right belt moves faster, which causes her to work her left leg out more...it bears weight longer.
Here's a back view. Two different belts going 2 different speeds. It's important to note that this is experimental, and Jessie is part of a study that hopes to show the effectiveness of the machine.
This is not mainstream rehab equipment.
"Oh, Well, at least I get to watch movies..."
And now the play time. The Child Life people at KKI are amazing and are really inovative in their ways of making the kids feel normal and not institutionalized. They have weekly outings and many planned activities throughout the week. This is a water fight that the kids really enjoyed. I kinda had fun too.
Macey and Jessie in the heat of battle.
"Don't you dare, Macey!!!" Watch Out Isabella (Bella) is filling up behind you!
Good night and I hope to see most of you in Texas Soon. Thanks to all of Jessie's Angels for carrying us through this difficult journey.
God Blessings to All,