We have a pre-surgery and surgery schedule from Johns Hopkins. Although we are scared, and it makes this nightmare all the more real, we are at the same time relieved that Jessie may finally see some relief. She has been having some really good days lately, and we are thankful for that.
The schedule is below, and relatives will be staying with the boys during our times of absense, so the boy's life should be disrupted very little. Also, we plan to try to get a video conferencing going so that Jessie can talk to her family and her big brothers while she is in the hospital and rehab. I'll let you know how that goes.
The Schedule is below:
Pre Surgical Testing
May 12th: Monday – Fly into Baltimore
May 13th: Tuesday - Meet with Dr. Benjamin Carson, Jessie's Neurosurgeon http://www.drbencarson.com/
May 14th – 17th – Epilepsy Monitoring Unit (Under the care of Dr. Eileen Vining, Jessie's Baltimore Neurologist and her assisstant Diana Pillas)http://www.hopkinsneuro.org/epilepsy/doc.cfm/expert/Eileen_Vining
After we are released from the EMU, we will fly home.
Hemispherectomy Surgery ( June 11th)
June 8th: Sunday – Fly into Baltimore
June 9th: 10th – Pre Surgery Evaluation
June 11th: Wednesday – Hemispherectomy Surgery
(The following depends on Jessie's strength and recovery)
June 11th – 14th : Pediatric Intensive Care Unit (PICU)
June 14th – 21st : Johns Hopkins Regular Pediatric Room
June 22nd – July 12th : Kennedy Kreiger in-patient Rehabilitation Center
Please Keep Jessie in your prayers during these critical dates.
With all our love,
Cris, Kristi, Matt, Jake, Josh, and Jessie