Friday, February 29, 2008

2nd Opinion Appointment confirmed at Johns Hopkins : March 10th

Diana Pillas (Out-of-State Coordinator for Johns Hopkins Epilepsy Center) called today and said that we have an appointment for Monday, March 10th with she and Dr. Vining. Diana was very nice, organized and helpful to Cris this afternoon and is a great patient advocate. We appreciate her help in making a our journey from Texas to Maryland a bit easier.

It doesn't sound like a second opionion any more, but more of
a diagnosis confirmation. They have already looked at Jessie's Video
EEG, and the Epilepsis Partial Continua (EPC) is evidently well documented
and presented.

I think that we will tour the Kennedy Krieger Institute (post-hemi rehab center) as well.
Here's a link if you want to check it out:

Tonight we are going to book air, etc. We'll fill you in on the details when we have a complete picture for you.

Cris and Kristi

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