The thing that is hardest for me, is that she is obviously scared, and I can't pick her up or give her a big hug. Her head is still to the right, and taped flat to the bed, so she still can't move her head. It must be an awful feeling to feel like you are held down by your head...I can't imagine.
Despite some reports from the media, Jessie is NOT sitting up and talking. I don't have any idea where that report came from. Jessie is still in bad shape. She is improving, but there is a long way to go. I'm sure we will see more improvement tomorrow.
We saw more movements on the left side today. These are small movements, and we are very excited by them, but the left side of her body is completely limp. This was to be expected.
She did talk a little today, but she was hard to understand. She said "Papa" - this is Kristi's
Dad. She likes him to sing to her. She said "Daddy", "Mommy", "IV Out", "I can see, but not very well." (one eye is swollen shut), and because of the surgery, she will only have half of her field of vision in both eyes).
She puckered up and gave us each a big kiss!!!
It was a hard day in the PICU. A little girl named Faith went to live with the angels today. She had sever hydrocephalus. She left her mom, dad, and twin-brother (Christopher) to carry on here. We all cried today with them. Please say a prayer for this family.
There is a family from Mexico City here, and their 11-month old son, Darel, will die unless he gets a liver transplant soon. We cried and prayed with their family tonight. Please say a prayer for Darel and his family.
I'm sorry for such a depressing blog today.
Al, Lynn, and Jodie Miller came up to visit Jessie today. Jodie had a Hemispherectomy 15 years ago, and is starting college in the Fall. She is a sweet girl. Despite the hard day, we ended on a good note. Seeing Jodie, reminded us of what Jessie can be someday. I've attached a picture of Jessie tonight, then us with Jodie.
We went out to eat with the Millers, and Jodie was brainstorming (or half-brainstorming as the case would be) ideas for new shirts to be sold to support The Hemispherectomy Foundation. Remember, these ideas are coming from an 18 year-old girl with only one cerebral hemisphere.
1) I only have half a brain, what's your excuse?
2) Anyone with half a brain knows that!
On another note, the brain surgeon, whom Jessie wrote "Texas Tech" on came by to visit her today. What a nice guy this one is. Maybe he'll see this and give us his thoughts on the best way to scrub permanent marker off your forehead.
Good night and God Bless you all for your support.